A friend once sent me a book "Shelter from the Storm." It took me a while to get to it. I had so many to read and so little motivation. Looking back I wish I would have read this one sooner, not nearly 20 months later. The quote that spoke to me was:
"When parents are told that their child will surely die, their grief is shattering. Most people say it is the worst thing that can happen in the human experience. So I tell you now what you most likely cannot believe, but what is mercifully true: You can survive. Your life will be permanently changed, and grief will always be part of it. But you will be okay. You will get through this, and there will be help from many directions."