Am I really going to blog?: Happy Late Valentines.....

Sunday, February 15, 2009

Happy Late Valentines.....

Valentines Day 2006.

Valentines 2007. Cam was about 3 weeks post-1st-transplant. That is why I'm wearing surgical gloves. I was breaking multiple transplant room rules by being too close and having bodily contact with him. I may have even touched his bed.

This is Samantha's friend. He brought her a special pink elephant for Valentine's Day. He is a real sweetie.

Sam has not felt great yesterday & so far today. She has a runny rose & a cough. I'm glad it is not that stomach flu that is going around. She has been having a great time playing with "Mia" her American Girl doll with ice skates compliments of our friend Jennifer Chichester. Samantha particularly likes this doll because "she has hair like me."

Lori

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I've had some emails & other questions about how to leave a comment on this blog as opposed to the caringbridge site. There are no restrictions for comment on either site - but if you are mean, I might remove it.

- On here you, click on the word "comment" at the end of any given post. It should take you to another page with a box for you to type in. I believe it says above the box "Post your comments" or "leave a comment."

-There may (or not) be a box for you to type in the letters that you see. If you don't have a google user id, check the "anonymous" block and you can leave your name at the end of your comment so I'll know who it is from.

-Finally, click on "publish your comment."

If this doesn't work, let me know. If you notice that I have missed a step, let me know that as well.

1 comment:

BradFebruary 16, 2009 at 8:02 AM
Lori:

It is funny how we watch and pray for each other from afar. I followed Cameron's blog daily and read your blog daily as well. I am so sorry for you, but happy that Cameron no longer suffers. I did not know Cameron, but shed many tears that morning I read he had passed. I still miss Trey as if he was my own. Many times I am torn watching what Ryan must endure. This should not happen to any child.

Thank you for the note. This recent set back was a blow we were not expecting. Ryan is a fighter and will get through this. Thanks again.

Brad

Brad Salmons
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I HOPE....

I hope you never have to hear the words, 'Your child has cancer.'

I hope you never have to hear, 'The prognosis is not good.'

I hope you never have to prepare to undergo radiation or chemotherapy, have a port surgically inserted into their chest, be connected to IV poles. Look at you with fear in their eyes and say, 'Don't worry Mommy, everything will be okay.'

I hope you never have to hold your child as they vomit green bile.

I hope you never have to feed them ice chips for lunch.

I hope you never have to watch the 'cure' you pray for slowly take away their identity, as they lose their hair, become skeletal, swell up from steroids, develop severe acne, become barely or unable to walk or move, and look at you with hope in their eyes and say,'It's going to be okay, Mommy.'

I hope that you never have to stay in the hospital for weeks, months, or years at a time, where there is no privacy, sleeping on a slab, with your face to the wall, where you cry in muffled silence.

I hope you never have to see a mother, alone, huddled, in a dark hospital corridor...crying quietly, after just being told, 'There is nothing more we can do.'

I hope you never have to watch a family wander aimlessly, minutes after their child's body has been removed.

I hope you never have to use every bit of energy you have left, with all of this going on around you to remain positive, and the feelings of guilt, sorrow, hope and fear, overwhelm you.

I hope you never have to see a child's head bolted to the table as they receive radiation.

I hope you never have to take your child home (grateful but so afraid) in a wheelchair because the chemo and radiation has damaged their muscles, 35 pounds lighter, pale, bald, and scarred. And they look at you with faith in their eyes and say, 'It's going to be okay Mommy.'

I hope you never have to face the few friends that have stuck beside you and hear them say, 'Thank God that is over with,'...because you know it never will be. Your life becomes a whirl of doctors, blood tests and MRI's and you try to get your life back to 'normal'. While living in mind-numbing fear that any one of those tests could result in hearing the dreaded words...'The cancer has returned' or 'The tumor is growing.' And your friends become even fewer.

I hope you never have to experience any of these things... Because...only then...Will you understand...

(author unknown)